| 07/01/09: New pics of Jaden are on his picture page. Read about his trip to the beach by clicking the text next to his picture below. Also, Lisa had a great idea for a summer get-together at the Aransas Pass Aquatic Center. Details are below. Please let Lisa know if it's something you'd like to do. |
What's New at CBDSA.com?
| Abby and her dollhouse |
| Natalie and her playhouse |
| Coastal Bend Down Syndrome Advocates (CBDSA) "Something Extra - Something Special" |
CBDSA Mission Statement
Based in beautiful Corpus Christi, Texas...
We intend to provide support to all whose lives are affected by Down syndrome, educate the
community about Down Syndrome but most of all promote inclusion and have fun with our
children.
Through the dissemination of information within the community and education we strive to
make her life and the lives of other children with Down syndrome richer.
We intend to provide support to all whose lives are affected by Down syndrome, educate the
community about Down Syndrome but most of all promote inclusion and have fun with our
children.
Through the dissemination of information within the community and education we strive to
make her life and the lives of other children with Down syndrome richer.
| This week (06/27/09) the spotlight is on ... |
Down Syndrome (also called Down's Syndrome in
the UK and elsewhere) encompasses a number
of genetic disorders, of which trisomy 21 (a
nondisjuction) is the most representative, causing
highly variable degrees of learning difficulties as
well as physical disabilities. It is named for John
Langdon-Down, the British doctor who first
described it, in the late 19th century.
Definition courtesy of wikipedia.org
the UK and elsewhere) encompasses a number
of genetic disorders, of which trisomy 21 (a
nondisjuction) is the most representative, causing
highly variable degrees of learning difficulties as
well as physical disabilities. It is named for John
Langdon-Down, the British doctor who first
described it, in the late 19th century.
Definition courtesy of wikipedia.org
What is Down syndrome?
CBDSA has received the following messages through the "Contact Us" page
of our website. We're here for our kids and our parents...and it's working!
I really love your website. I ...would like to have a direct phone number to
make referrals. I also want to thank Lisa and Luis for visiting with my patient
on Friday. We are so blessed to have all of you. Thank you so much for all
that you are doing for these families; you are all angels." (Note: I've
shortened the comment a little to keep the contributors name and
organization private.)
"I am blessed to read the stories and see the pictures and the willingness to
be advocates for special children like Natalie. I am a neonatal nurse
practitioner (0ne of the few who cared for Natalie in the hospital) and reading
this had made me change the way I speak to parents. I understand more
than the medical diagnosis, I now see that being positive and focusing on the
abilities of these children..not the disabilities is what matters most. Bless you
all."
of our website. We're here for our kids and our parents...and it's working!
I really love your website. I ...would like to have a direct phone number to
make referrals. I also want to thank Lisa and Luis for visiting with my patient
on Friday. We are so blessed to have all of you. Thank you so much for all
that you are doing for these families; you are all angels." (Note: I've
shortened the comment a little to keep the contributors name and
organization private.)
"I am blessed to read the stories and see the pictures and the willingness to
be advocates for special children like Natalie. I am a neonatal nurse
practitioner (0ne of the few who cared for Natalie in the hospital) and reading
this had made me change the way I speak to parents. I understand more
than the medical diagnosis, I now see that being positive and focusing on the
abilities of these children..not the disabilities is what matters most. Bless you
all."
Our group IS making a difference
CBDSA.COM has been visited by
friends from the following
countries since March 2008:
friends from the following
countries since March 2008:
Argentina
Australia
Belgium
Bulgaria
Brazil
Canada
China
Columbia
Croatia
Czech Republic
Denmark
Egypt
Finland
France
Germany
Gibraltar
Greece
Iceland
India
Indonesia
Ireland
Islamic Republic of Iran
Israel
Japan
Korea
Kuwait
Australia
Belgium
Bulgaria
Brazil
Canada
China
Columbia
Croatia
Czech Republic
Denmark
Egypt
Finland
France
Germany
Gibraltar
Greece
Iceland
India
Indonesia
Ireland
Islamic Republic of Iran
Israel
Japan
Korea
Kuwait
Latvia
Malaysia
Malta
Mexico
Netherlands
New Zealand
Norway
Peru
Philippines
Portugal
Puerto Rico
Qatar
Russian Federation
Singapore
Slovenia
South Africa
Spain
Sweden
Switzerland
Turkey
Ukraine
United Kingdom
USA
Vietnam
Yemen
Malaysia
Malta
Mexico
Netherlands
New Zealand
Norway
Peru
Philippines
Portugal
Puerto Rico
Qatar
Russian Federation
Singapore
Slovenia
South Africa
Spain
Sweden
Switzerland
Turkey
Ukraine
United Kingdom
USA
Vietnam
Yemen
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| Abby and her signing block |
| Natalie - June 2009 |
|
video that Tracy sent to
me. It's worth taking
time to view it.
Click HERE to view the
video
me. It's worth taking
time to view it.
Click HERE to view the
video
2008 Tax Info for Parents of Children with Learning Disabilities
Lisa emailed this info to our group but I want
to put it here for those who don't receive our
emails.. It's from a site for California schools
but you may find the information helpful.
to put it here for those who don't receive our
emails.. It's from a site for California schools
but you may find the information helpful.
disability may be eligible for valuable tax
benefits. This is an annual update. Click
anywhere on the text for the website.
benefits. This is an annual update. Click
anywhere on the text for the website.
There is a new park in Brownsville for children with disabilities. Playing Together. Click on
the text to go to the newspaper article. Why doesn't Corpus Christi have one?
the text to go to the newspaper article. Why doesn't Corpus Christi have one?
Playground Information
12 June 2009
Dear Mr. Gaston.
Thank you for your email regarding HB 4192 relating to medical assistance for certain children
with disabilities. Unfortunately HB 4192 was unable to pass out of the House Committee on
Human Services this legislative session due to budget constraints. However, I am happy to
report SB 187 by Senator Deulle, which is similar to HB 67 by Representative Lucio, for which I
am a joint author, passed both the House and the Senate and will become effective on
September 1, 2009. Senate Bill 187 will provide a Medicaid buy-in program for certain children
with disabilities, and the money appropriated for this buy-in program is in the 2010-2011 state
budget.
I appreciate the time you took to share your views with me. Please continue to keep me
informed of the issues of importance to you and your family., Working together, we can achieve
a brighter future for all Texans.
Sincerely,
Abel Herrero
State Representative, District 34
Dear Mr. Gaston.
Thank you for your email regarding HB 4192 relating to medical assistance for certain children
with disabilities. Unfortunately HB 4192 was unable to pass out of the House Committee on
Human Services this legislative session due to budget constraints. However, I am happy to
report SB 187 by Senator Deulle, which is similar to HB 67 by Representative Lucio, for which I
am a joint author, passed both the House and the Senate and will become effective on
September 1, 2009. Senate Bill 187 will provide a Medicaid buy-in program for certain children
with disabilities, and the money appropriated for this buy-in program is in the 2010-2011 state
budget.
I appreciate the time you took to share your views with me. Please continue to keep me
informed of the issues of importance to you and your family., Working together, we can achieve
a brighter future for all Texans.
Sincerely,
Abel Herrero
State Representative, District 34
An update from Representative Herrero on
HB 4192 - Medicaid Waiver
HB 4192 - Medicaid Waiver
To see SB 187 in it's entirety, go to this link..
This appears to be our version of a Katie
Beckett waiver. VIEW BILL HERE
This appears to be our version of a Katie
Beckett waiver. VIEW BILL HERE
Next CBDSA meeting: Lisa had a great idea for a meeting and social gathering. She found a way for us to
cool off after this week of record breaking temperatures (and the heat is going to continue). How does a
private swim party at the Aransas Pass Aquatic Center sound?. If you haven't already been to the aquatic
center, please look at their website at http://www.apaquaticcenter.com/index.cfm . After seeing the video,
I'm ready to go right now! Hopefully we can make this happen...Thanks Lisa.
cool off after this week of record breaking temperatures (and the heat is going to continue). How does a
private swim party at the Aransas Pass Aquatic Center sound?. If you haven't already been to the aquatic
center, please look at their website at http://www.apaquaticcenter.com/index.cfm . After seeing the video,
I'm ready to go right now! Hopefully we can make this happen...Thanks Lisa.
What's Up With the Davilas?
